Friday, 18 March 2011

What The Heck

Millie has had diarrhea on and off for a little over 2 weeks. NOT COOL. I knew it wasn't that she was sick with a bug because it was very random as to when her stomach would get upset. It seemed to have nothing to do with what she ate, or when. She would just randomly be sprinting to the bathroom and then she'd go a day without being sick at all. The poor girl was up all night Thursday night and I had had enough so I insisted she be seen at clinic. I had called several times before this, but I felt like they were treating me like I was a bit nuts. It's only diarrhea. Well that's not all it was. After the head nurse in the Oncology Clinic saw Millie they knew something wasn't right. They pumped her full of fluids, took blood and stool samples, and we waited. Millie's preliminary blood counts started coming back and everything was looking good. Our nurse Mindy (who is one of my favs), thought that she would be needing a blood transfusion for sure but her hermatocrit was great. Then we finally got her ANC and it too was great.

Then they can rushing back in and told me to stop all chemotherapy immediately. Amelia's liver enzymes were off the chart. Her poor little body is so out of whack. Just when we think she is in the clear and we are on the "easy" stage something like this happens. I am sick that Millie has been in so much pain over the past two weeks and that everything we were doing for her was making it worse. She has Zofran for nausea and it's extremely hard on the liver. Man, sometimes I wonder what in the heck I'm doing. Being a mother is exhausting. I just want to help her and take away all her pain. I hate that she has to deal with such horrible side effects. She even lost 3 pounds in 2 weeks. On a tiny little body like hers it's A LOT of weight. That's actually one of the reasons I insisted on them seeing her. She was getting way to skinny.

Now it's a waiting game. Millie will get re-tested on Friday and hopefully we will have some more answers as to what's going on with her.

Millie's Current Counts vs. 2 Weeks Ago
Height: 107.2 cm vs. 107.2 cm
Weight: 16.0 kg vs. 17.3 kg, ( 3 pound weight loss)
ANC: 1800 vs 1000
Liver Enzymes:
ALT: normal range 10-25
Millie's 997
AST: normal range 15-50
Millie's 574

25 comments:

Christine Bowman said...

So sad to hear this. You are an amazing Mom who has reason to trust in the best that the medical profession can offer. You're doing great Amanda!
My love to you, Millie, and the rest.

Crystal and Skyler said...

Oh my goodness Im so sorry. Poor little thing. Im sorry things arent going great right now. Whats her bili? What do they think is causing the rise in her levels? I will be thinking about you guys and praying that things will normalize soon.

Crystal

CandD said...

We'll be thinking of Amelia and your family.

Christine and Make-A-Wish staff

keri and taylor said...

Mand, I'm so sad to hear that. I hope that she gets better soon! You guys are in our prayers.

nsudburyfam said...

I'm so sorry to hear this. I hope things start getting better. We're thinking of you :)

Rachel said...
This comment has been removed by the author.
Rachel said...

I am so sorry to hear. I will keep you guys in my prayers. Hopefully all will go well
<3/Rachel R

Missy said...

Amanda, I really dont know how you do it. Millie will be in our prayers this week.

Jesse C said...

Poor Millie. You are doing a fantastic job with her, she is lucky to have you.

Chelsea said...

Amanda! I just read this post and I wish I would have seen it earlier! I'm so sorry poor Millie is struggling! I'm so glad you went with your gut and just took her in. We are praying that those levels come down quickly! Sending lots of love your way! XOXOX

Amanda said...

Crystal, her bili is normal.

Briana said...

Oh I'm so sorry - poor Millie! And you ARE a great mom - as proven by the fact that you trusted your instincts that something wasn't right and did what it took to get her seen (hate it when people talk to you like you're crazy even though they tell you to call "anytime" for "any reason"!). Are they going to do any scans to check on things? After round 2 a few weeks ago, we got Elena's numbers and her ALT and AST were also off the charts (her ALT was 750), but they told us it was normal from the methotrexate and that they wouldn't do any scans until it was above 900. So, that's why I was wondering if they'd talked about that with Millie. Keep us posted!

johnjillhuz said...

CRAZY! I am sorry Millie has been so sick and I'm sorry you guys are having a difficult time. Cancer can be so cruel. You are a good mother! You are doing such a good job taking care of a Millie.

Danalisa said...

ugh, that stinks! I'm sorry to hear she is struggling with all this. you all deserve a break! You are an amazing mom and you are doing all the right things for her...so glad you went with your gut and insisted they see her. Sending you hugs and prayers!

Blake Simkins said...

Hang in there Amanda... I'm so sorry and will keep you in my prayers!

mom said...
This comment has been removed by the author.
Anonymous said...

I hate it when Amelia has trouble! It just breaks my heart! And Amanda, you are an amazing mom!!! Don't ever sell yourself short! I think you have been remarkable! Let me know what I can do for Millie. I sure do love her!!!

Anonymous said...

That last comment was me, Miss Patti. Sorry.

Jodi and Tony said...

Oh lordy, just when things seem to be going so well. I hope her counts return to normal quickly. Hoping this is just a small blip in her road to a complete recovery. Love to your family. xoxo

Marie Steele said...

Just when you think you can breathe easier, life unravels, huh? I'm so sorry to hear about Millie's weight loss and liver problems. Please know that we will continue to pray for all of you. I am so glad that you insisted that she be seen. Mama knows best! Hope she makes a quick turn around and feels better soon. Thinking of you!
-Marie

Kristin said...

Oh my, that is way off the charts. I'm so sorry you are dealing with all of this, and I know the stress and worry is overwhelming. I hope you get some more answers on Friday Amanda. Isn't it funny how we have to insist they be seen? Why do they make us feel crazy, I just don't understand. ((((hugs))))

lea said...

Oh Amanda...Im so sorry! We will definitely keep her (and you!) in our prayers. Way to "go with your gut"...proof your a good mommy! Hang in there and keep us posted!

Duchess said...

Oh, Amanda, I am so sorry. She has just been through so much, and you have been through so much. I'm praying that soon everything will even out and you will have a time of peace.
Feel better soon, Millie.

Whitney said...

I am so sorry she is so sick. You guys are inspirational! We will keep your sweet family in our prayers. Especially Millie!

lindsay Roscoe said...

Giver her loves! We are always praying for Mill!