Monday, 29 November 2010

Phone Pictures

I got a new phone so Cousin Sherry just uploaded all my old pictures to our computer. I thought it would be fun to post some of them. They are really out of order but I didn't want to fuss with it.

Austin at Primary Children's Hospital waiting to be taken back for his double hernia surgery.
(the silly outfit was the hospitals. I promise I won't put my son in Kitty jammies ;) )

Millie and Grandma Jager wasting time at our November Clinic appointment.
This is a picture of Austin at the Spaghetti Factory a couple months ago. He loves to put straws in his mouth and blow air through them. He thinks it's hilarious.

Austin in the Spring of 2010. I love it when he makes this face.

Amelia on December 17, 2009 in the ER at Primary Children's Hospital. We had just been sent up from my doctor's office with Millie's blood tests. We basically knew she had cancer at this point but they were doing more blood tests. The heat packs on her arms helped prep her veins. We knew she was really sick by looking at her, we just had no idea how sick.
Brady and I at the 1st U of U game of the 2010 session.
Austin in the Intensive Care Unit at Intermountain Hospital

Me waiting for them to start my C-Section
Austin in the summer. He loves to swing.

Miss. Amelia giving her famous thumbs up. Summer 09
Austin and His Daddy
Grandma Jager and Amelia at the doctor after slamming her finger in the door. She had to have a hole burned into her nail to let the pressure out. March 09' Austin in his BIG boy carseat for the 1st time. He was so HAPPY!

Summer 09'
Fall 09'
Brady would take Millie to see High School Football games when Austin was in the NICU. It was a fun way for Millie to get some much needed 1 on 1 time since we were gone so much. She LOVED watching the cheerleaders and hanging out with her dad. Fall 09'
Not sure when this was taken, but it looks like she was around 4.
I love that she fell asleep holding her baby.

Thursday, 11 November 2010

Clinic November 2010

(so I wrote this post on November 11, but I kept forgetting to upload the picture, so that's why I'm just posting it now)

It was so nice to walk into clinic today and see lots of familiar faces. There were 3 other families there from our Facebook support group, and although I wish we knew each other for a different reason then we do, it's still a wonderful comfort. Sadly I left my camera in the car or I would have LOVED to get a picture with all our Cancer Fighting Cuties.

My mom came with me today (THANK HEAVENS!). It's always nice to have an extra pair of hands to wrestle the Austin Monster, and some one for me to chat with while we play the waiting game. Luckily we were on what they call the "fast track" and we were out of there in 2 1/2 hours, yep, that's FAST for clinic. Our other buddies were there for more like 8. :(

Everything went well. Millie's blood counts are all good which was nice to hear since she is on the full dose of oral chemo right now. I thought she was looking pale, and I still do, but a blood test doesn't lie.

Today was just like every other clinic day; height measured, weight check, blood pressure taken, and then a lot of waiting and meeting with a nurse and 2 different doctors. Millie was a champ when they accessed her PORT and administered her Vincristine. I am so proud of her!

Clinic Stats:
Height: 104 cm
Weight: 16.2 kg
ANC: 2000

Everything else was written on November 11, but now I'm writing tonight

I mentioned before that Millie has been pale. She still is and along with that she is incredibly tired. She takes a nap almost every day and this afternoon she slept for 4 HOURS! I'm worried about her. She's not sick, she doesn't seem to be getting sick, her counts are actually on the high side, so what is going on? Someone on our support page wrote that our medical innocence is gone and it's so true. My head no longer goes to she's probably growing, or maybe catching a cold, my mind wonders off to the worst possible scenario...her cancer is coming back.

The chances of that happening during Maintenance chemo is incredibly low, and I'm sure that's not what it is, but I HATE that that's where my brain goes. I don't know if I could handle it. I really don't. I probably sound a little like a mad woman at the moment but these fears are my reality and it's not fair.

Her next appointment is December 9th and in a way I'm actually looking forward to it. As much as I HATE chemo and HATE what it does to my baby girl and HATE what it could do to my baby girl over her life, I am grateful for it at the same time.

Chemo is saving her.

Wednesday, 10 November 2010

A Little Break

Before I talk about our St. George trip, which was soooooo needed, I want to tell you about our new DISNEY WORLD JAR. We had so much fun when Make A Wish sent us to Disney World that we decided we want to take Millie back when she finishes her last round of chemo. Ya I know that's not until 2012, but I love having something WONDERFUL to look forward to. At the end of all this Millie will deserve another dream vacation and we will all want to CELEBRATE!

As a family we went to the craft store, bought the perfect jar, found some sparkly princess stickers, and got to work on our new project. Every time Millie puts a new coin in the jar her whole face lights up!

ST. GEORGE was awesome.

There is just something relaxing about being somewhere different. We went down with some of our cancer friends. It is so nice to have someone to chat with that understand what you're feeling, and what your child is feeling. We also finally got to meet another cancer family that we only know through their blog, the Prince Family. They really were so nice! They let us crash at their house all day Saturday while the guys watched the U game.
Thank you so much. I really don't know how you do everything you do. I can't imagine making the 4+ hour drive from St. George to Primary Children's Hospital, Especially with a new born, a 5 year old, and a 2 year old on chemo. You are amazing Dani!

The Little Guys

Austin, Chase (cancer friend from St. George), Caden

The Little Girls
Cami (cancer friend), Abby (Chase's Big Sis), Millie

They are all 5!

We also got to squeeze some swimming in.

Before we headed home on Sunday we let the kids get some wiggles out at the park.
Love them!

It was a short trip, but I'm so glad we went.

To see more pictures you can check out both Cami and Chase's blogs.

Tuesday, 9 November 2010

Congrats Brinley

Sweet little Brinley is finished with her treatment!!! WE ARE SO EXCITED FOR HER. Go to her blog to check out the video of her last day of treatment....beware you may cry, I couldn't get a grip. It also gives you a small idea of what Amelia does when we take her up to clinc.