Thursday, 23 December 2010
Thursday, 16 December 2010
December 17, 2009 (around 3 months later) the day I took her in for a blood test. It was very obvious that something wasn't right, just by looking at her. I hate that she got this bad.
Just a handful of pictures from our 1st week in the hospital.
Month 1 - Steroids take over our daughter physically and emotionally.
This one is from her 4th birthday before she was diagnosed through her 5th birthday.
September 28, 09-September 28, 10 MILLIE'S MAIL (thank you!!!)
Diagnosis Day to Today
December 17, 09- December 17, 10
Today we have a HAPPY, "HEALTHY", STUNNING little 5 year old.
Friday, 10 December 2010
Before heading down to the Rapid Treatment Unit (RTU) for her procedure we had to check in at clinic; height, weight, blood pressure, chemotherapy in her PORT, a script of steroids, and of course CRAFTS WITH PAT!
Millie getting her blood pressure. She looks so little sitting there.
Her Christmas ornament she worked on while waiting for her Vincristine to arrive from the pharmacy.She also got a surprise visit from "Ben". He is such a sweet dog.
After her 1st dose of chemo and on our way to the RTU we ran into one of Amelia's cancer buddies, Cami. She was headed up to start her second round of her most difficult chemo. They are just weeks away from maintenance. HOORAY for the Carver Family! You're almost there!
They were really behind down in the RTU so the Child Life Specialist came in and made a doll with Miss. Millie. She was so cute with her "Millie Doll". If you look really close you can see that she drew rainbows for her eyes. I love my creative little bug.
Listening to her heart.
Millie played with her doll up until her "sleepy time stuff" kicked in and she was out cold.
I hate seeing her that way, just laying there. It breaks my heart.
I snapped these pictures as I was leaving. They don't let us stay to watch the spinal tap.
She woke up scared and confused. She kept saying, "I want my mommy," over and over again.
Even when Millie is upset or scared she does what she has too. She always has. I am so proud of her bravery. Amelia amazes me every day.
Wednesday, 8 December 2010
Tuesday, 7 December 2010
1. Get registered in the bone marrow donor registry: http://www.marrow.org/JOIN/. There are many people who need a life-saving bone marrow transplant, but who don't have a match. Last month we heard about this sad story - an 11 year old girl with AML (leukemia), who passed away. She needed a bone marrow transplant and a perfect match couldn't be found. YOU could be someones match. It takes about five minutes to get signed up. Get registered and give someone hope! Our friend Rachel was able to find a donor, can you imagine if she was saved because of YOUR marrow? What an amazing gift for everyone involved!
2. Donate blood at your local Red Cross you can also go HERE if you're not sure where that is. You can donate blood or platelets at American Red Cross. A single platelet donation can provide enough platelets for a full therapeutic dose for a patient in need. In fact, some platelet donations yield enough platelets for two or three therapeutic doses. By contrast, it takes about five whole blood donations to produce a single therapeutic dose. Many patients who need platelets are undergoing chemotherapy or organ transplant and have weakened immune systems. A platelet dose from a single donor reduces the patient’s exposure to multiple donors and is therefore preferred by many physicians. During a platelet donation, a small portion of your blood (less than one pint at a time), is drawn from your arm and passed through a sophisticated cell-separating machine. The machine collects the platelets and safely returns the remaining blood components, along with some saline, back to you. After the donation you can resume your normal activities, avoiding heavy lifting or strenuous exercise that day.
According to the American Red Cross: every two seconds, someone in the US needs blood. Before Amelia was diagnosed, I never could believe that number. I had no idea. But after going on this cancer journey with Amelia and sitting in clinic watching blood transfusion after blood transfusion going on around us, that number is much more real to me now. Amelia had 3 just in her 1st 2 days of treatment. We have a friend Elena who has had multiple transfusions in just one week - and occasionally, her transfusion has been delayed because the blood bank didn't have the type of blood she needed. Or there's our cancer friend, Skyler, who has multiple platelet transfusions every day. And there's millions of other cases where people need blood. It is life-saving. And it can be really scary watching your sick child and being told that there isn't the blood they need available.
Some Facts About Blood Supply Needs and Blood Donation -from the American Red Cross
•One donation can save the lives of up to three people.
•The demand for blood transfusions is growing faster than donations.
•Shortages of all blood types usually occur during the summer and winter holidays.
•Less than 38% of the US population is eligible to donate blood. (So if you can, you can see that you're sorely needed!)
•It is possible to donate specifically only platelets or plasma. This process is called apherisis.
•Donated platelets must be used within 5 days of collection - new donations are constantly needed.
•Healthy bone marrow makes a constant supply of red cells, plasma, and platelets. The body will replenish the elements given during a blood donation - some in a matter of hours, and others in a matter of weeks.
•The average adult has about 10 to 12 pints of blood in his body. Roughly 1 pint is given during a donation.
•The average red blood cell transfusion is approximately 3 pints.
•A healthy donor may donate red blood cells every 56 days.
•A healthy donor may donate platelets as few as 3 days apart, but a maximum of 24 times a year.
You must be at least 17 years old, weigh at least 110 pounds, and be in good general health to donate. (Eligibility requirements may vary in some states and donation centers.)
Please, if you possibly can, get out and donate this holiday season. It's one of the best gifts you can give.
This Christmas, GIVE LIFE!
**feel free to copy and paste this post onto your blog (I DID via- The Prince Family) - spread the word!
Monday, 29 November 2010
This is a picture of Austin at the Spaghetti Factory a couple months ago. He loves to put straws in his mouth and blow air through them. He thinks it's hilarious.
Amelia on December 17, 2009 in the ER at Primary Children's Hospital. We had just been sent up from my doctor's office with Millie's blood tests. We basically knew she had cancer at this point but they were doing more blood tests. The heat packs on her arms helped prep her veins. We knew she was really sick by looking at her, we just had no idea how sick.
Me waiting for them to start my C-Section
Miss. Amelia giving her famous thumbs up. Summer 09
Thursday, 11 November 2010
It was so nice to walk into clinic today and see lots of familiar faces. There were 3 other families there from our Facebook support group, and although I wish we knew each other for a different reason then we do, it's still a wonderful comfort. Sadly I left my camera in the car or I would have LOVED to get a picture with all our Cancer Fighting Cuties.
My mom came with me today (THANK HEAVENS!). It's always nice to have an extra pair of hands to wrestle the Austin Monster, and some one for me to chat with while we play the waiting game. Luckily we were on what they call the "fast track" and we were out of there in 2 1/2 hours, yep, that's FAST for clinic. Our other buddies were there for more like 8. :(
Everything went well. Millie's blood counts are all good which was nice to hear since she is on the full dose of oral chemo right now. I thought she was looking pale, and I still do, but a blood test doesn't lie.
Today was just like every other clinic day; height measured, weight check, blood pressure taken, and then a lot of waiting and meeting with a nurse and 2 different doctors. Millie was a champ when they accessed her PORT and administered her Vincristine. I am so proud of her!
Everything else was written on November 11, but now I'm writing tonight
I mentioned before that Millie has been pale. She still is and along with that she is incredibly tired. She takes a nap almost every day and this afternoon she slept for 4 HOURS! I'm worried about her. She's not sick, she doesn't seem to be getting sick, her counts are actually on the high side, so what is going on? Someone on our support page wrote that our medical innocence is gone and it's so true. My head no longer goes to she's probably growing, or maybe catching a cold, my mind wonders off to the worst possible scenario...her cancer is coming back.
The chances of that happening during Maintenance chemo is incredibly low, and I'm sure that's not what it is, but I HATE that that's where my brain goes. I don't know if I could handle it. I really don't. I probably sound a little like a mad woman at the moment but these fears are my reality and it's not fair.
Her next appointment is December 9th and in a way I'm actually looking forward to it. As much as I HATE chemo and HATE what it does to my baby girl and HATE what it could do to my baby girl over her life, I am grateful for it at the same time.
Chemo is saving her.
Wednesday, 10 November 2010
As a family we went to the craft store, bought the perfect jar, found some sparkly princess stickers, and got to work on our new project. Every time Millie puts a new coin in the jar her whole face lights up!
The Little Guys
The Little Girls
Cami (cancer friend), Abby (Chase's Big Sis), Millie
They are all 5!
We also got to squeeze some swimming in.
It was a short trip, but I'm so glad we went.