Thursday, 24 June 2010

It's Late and I'm Tired

I want nothing more then to go to bed, but I feel like I need to write. Write what I don't really know. Today was a big day though and it deserves acknowledgement whether I am in the mood or not.

MILLIE STARTED MAINTENACE TODAY!

It has been 6 months and 6 days since we received Amelia's diagnosis. My child has been through Hell and back and is stronger for it. She is a fighter, she is resilient, she is positive, she is silly, she is my Millie. I didn't mean to rhyme but it works.
What does all of this mean? Well, she still takes a whole crap load of of drugs but we don't have to go to clinic as much and her doses are lower.
Miss Millie's Maintenance Schedule:
Daily: 6-MP
Weekly: Methotrexate (once a week at home and once every 3 months in her spinal fluid)
Septra (2x a day for 2 days a week)
Monthly: Vincristine (given through her PORT, this is our hospital day)
Dexamethosone/Steroid (2x a day for 5 days every month)
This will be our life for the next 2 years.
On a side note: Amelia's hair should start growing back, we'll just have to wait and see...

10 comments:

Amanda said...

blogger is being really weird, which is not what I need! I can't fix my spacing and things; sorry.

Missy said...

That is wonderful news! What a relief to have the worst part over.

Danalisa said...

YEAH!! =) prayers continue....much love to you all for everything you have been through.

Lindsey said...

That is so great! She really is one tough little girl! (and so are you and Brady!) It will be fun to see if her hair comes back how it was before or a different color and curly! Way to go Millie!!

lindsay Roscoe said...

Woohoo!! She is SILLY!

The Buckley's said...

wow! we are so happy for her and your family! she is such a strong girl. we miss seeing her so much!

keri and taylor said...

You guys are so amazing! You are much stronger than I would ever be. Millie couldn't be any cuter...good luck with the maintenance!!

Anonymous said...

Hooray for Amelia!!! This is a big day for all of you! Give that darling little girl a huge hug from me! Love you Amelia!!! -Miss Patti

Jodi and Tony said...

Great news! You all are amazingly strong. Always thinking about you guys!

Kat said...

YEYYEYEYEEY Maintenance! We got a post card from you today Mimi LOVES it! So cute. It's on the fridge <3