MILLIE STARTED MAINTENACE TODAY!
It has been 6 months and 6 days since we received Amelia's diagnosis. My child has been through Hell and back and is stronger for it. She is a fighter, she is resilient, she is positive, she is silly, she is my Millie. I didn't mean to rhyme but it works.
What does all of this mean? Well, she still takes a whole crap load of of drugs but we don't have to go to clinic as much and her doses are lower.
Miss Millie's Maintenance Schedule:
Weekly: Methotrexate (once a week at home and once every 3 months in her spinal fluid)
Septra (2x a day for 2 days a week)
Monthly: Vincristine (given through her PORT, this is our hospital day)
Dexamethosone/Steroid (2x a day for 5 days every month)
This will be our life for the next 2 years.
On a side note: Amelia's hair should start growing back, we'll just have to wait and see...