Thursday, 21 January 2010

Playin Around and a Few BIG Days for Millie

Millie didn't have clinic on Monday because of the holiday so we spent the day relaxing. Austin and Millie we being cute so I went a little camera happy. Millie has been off her steroids for a week today and we are finally seeing OUR little girl come back to us.


AMELIA NEWS:

(These pictures are from Tuesday and Wednesday)
Our clinic appointment was moved to Tuesday. This was a BIG day for her...
  • In clinic they drew blood and found out her RED blood count was low, so we had to schedule for Wednesday to get a transfusion.
  • In the OR They placed her PORT in her chest. The Port placement it's self went well which is really the best news, but it was a NIGHTMARE of a day. She wasn't suppose to eat after midnight the night before (we did wake her up at 4am to feed her-don't tell on us) and they didn't get her into surgery until nearly 5 PM! The poor kid was starving to death! We were suppose to be in the hospital until around 4:30pm and we got home about 10PM.
  • She finished her 1st round of chemo called the Induction Stage, it was 29 days.
  • They tested her Bone Marrow. It shows ZERO signs of cancer! This is what they expected to happen, but we are grateful she's following protocol. They also sent her marrow away for more extensive testing, the results will be in sometime next week.
  • Administered one of her chemo drugs into her spinal fluid. No news here, she handles this wonderfully!
  • Drew more blood in the OR. Someone in the the lab messed up and they had recorded the wrong blood type. Luckily they caught it Wednesday before her transfusion, but it meant they they had to retest her when we arrived Wednesday after being there all day Tuesday. It took 3 hours to get the results back and then another 2 hours to transfuse. We have ALL had enough of the hospital for this week! (thanks mom for coming with us).

I want to post these pictures so I have a record of what the Steroid and Vancristine have been up to on her physical appearance since I talk a lot about the emotional side of things. These pictures were taken over a week ago. Her face was much more puffy and her hair is barely hanging on now, The tummy shot doesn't do it justice either, but this is the only one I have.

NOW FOR THE BEST NEWS! AMELIA GOT TO GO TO SCHOOL YESTERDAY!
I wish I had taken her picture. She was overwhelmed with excitement. I cried like a baby when I dropped her off. I am so proud of her! I know some of you preschool moms read up on Millie and I want you to know how grateful I am for your support. Some of you have sent cards or posted on the blog and every time it makes Millie smile. Thank you for putting up with the little changes that Patti as made to the classroom. It means more then you will ever know. Right now the thought of school is what keeps my Millie going. She loves everything about it, including your children!
THANK YOU.

14 comments:

Jodi and Tony said...

You do such a good job of explaining everything. You are a strong mama and Millie is lucky to have you. It was great talking to you today.

Love the pictures, although seeing Millie like this breaks my heart. But I find comfort in the fact that I know she's going to kick this cancer's butt!

xoxo

ash said...

This is hard. Your a good mom! keep it up!

Ames Family said...

Amanda I am in tears. I can not imagine the emotional toll this must have on you. I can't believe how miserable Millie looks in the "tummy" photo. I am SO happy that she got to go to school!!! I am glad that she is acting more like herself now. I love you Amanda, and Tate prays for Millie every night.

Ali T said...

I think I need to bring Millie some ice cream...it might make her and me feel better!

Danalisa said...

I can't believe how puffy she got! My goodness! Poor thing!! It must be so hard seeing your baby like that! But, I am soooo grateful that she has such a strong mommy and daddy who are getting her through this with smiles on her face. I know she's gonna kick it's butt! Your descriptions are appreciated about what is going on...we wonder daily how you all are. Will try and call this weekend!

Eisha said...

you can hardly recognize her she is so swollen! My heart goes out to her!

lindsay Roscoe said...

That was a great post. I also appreciate the information and posts. Both of those kids are the cutest ever!! I love them both very very much!

Princess P said...

Lots of loves. Glad your "seeing" Millie again.

McCall said...

although your life is so busy, it is great that you find the time to blog about all that is going on. when this is all over and done with - especially as millie grows up - you will have this "journal" to look back on.

i love the updates and i am so happy to hear that things are going as they should.

The Buckley's said...

Amanda, It was so good to see her at school on Thursday. I honestly LOVE her so much. I have missed having her at class and it was so much fun to be with her for a little bit. I wish I could have spent more time with her. I got such a cute picture of Braxton and her together. I'll have to give it to you. She is so sweet and I hope we will get to see her more. I miss her! Please let me know when I can do anything.

lindsay Roscoe said...

MILLIE- YOU ARE SO AMAZING AND STRONG, AND BEAUTIFUL! bEAUTIFUL INSIDE AND OUT! yOUR STRENGTH AMAZES ME . YOUR STRENGTH GAVE ALL OF US THE STRENGTH TO KISS ALL THAT HAIR GONE!!! GOODBYE HAIR...WHO NEEDS YA' ANYWAY!!! tHANKS FOR THE PARTY. WE LOVE YOU MIL MIL. yOU WERE STRONG AND COUREGOUS! WAY TO GO CHILDREN 6 THAT INCLUDES DADS.

miss patti said...

I was so happy to have Amelia back at school! We have all missed her so much. I'm glad that she has been so happy to get back to our little routine at school. It just wasn't the same without her. We love you Amelia!!!

di said...

Unbelievable!!!!! I'm Cami's grandma and I am living with Pat/Chel/Cam & Caden while they go thru these first few rough months. I keep thinking...tomorrow will be better but then...new challenges arise. ANYWAY....Chel told me about your blog. Bless you! You have helped Chelsea more than you will ever know. She relates to you and I am in awe at looking at this pic of cute Millie...it looks just like Cami looks now. Cam keeps telling me...."my tummy feels all big and stretchy" Poor thing waddles now and her feet hurt. My heart aches! chemo/blood trans with alergic reaction yesterday. Oy Vey! Didn't mean to go on and on but oh it's so nice to see that what is happening is...well....normal for what these kids have to endure. Thank you again for this blog! ~ Grandma Di-Di

di said...
This comment has been removed by the author.