(sorry if pictures are cut off or spacing is strange, blogger is acting up on me)
I am so behind that I think I will focus on our first stay for this post and break it up in sections from there. This was the longest 39 days of my life. Every single one of us felt like it would never come to an end and although we kept telling Millie that it would and we'd be home before she knew it, it felt like a life time. The last week or so when I would leave the room I would peek in the window and Millie would start bawling. I could hear hear crying and hear her fears of never being able to leave. Amelia doesn't like to talk about how she is feeling so sometimes when we know she needs a minute to cry I will politely exit the room and give her some space. Amelia is a 21 year old woman in a 6 year old body and she doesn't want others to share in her pain most of the time. As her mother it's heart breaking. I want to hold her and let her cry on my shoulder. I can hear my dad saying, "now you know how we feel". When I'm upset I just want to be left alone, maybe that's how we all are. Anyway, I'm rambling. Back to the subject... Millie did wonderful in terms of her chemo. She received some nasty drugs and her body in terms of side effects handled them extremely well. Other then waiting and waiting and waiting for her counts to recover we didn't see too many side effects.
Amelia had so many supporters through this first month that I'm not sure how to even thank you all, but to say Thank You. If there is any good in this nightmare it's how much love we feel from everyone around us. It's overwhelming and we are grateful for everyone single one of you.
Another awesome experience we had was how many people supported Amelia in shaving their heads or donating their hair to Locks Of Love. One of Brady's great friends, Jeremy Wilkins, held a Head Shaving event through facebook. We were shocked with how many of you shaved your head, or your child's. Every single picture Millie saw put a smile on her face. I know shaving your head or cutting off your long hair is a big deal and it meant the world to her. Some of her cousins came up to the hospital and let Millie join in the fun.
Austin wanted nothing to do with getting his hair cut. He was hysterical about Brady and Millie shaving theirs so I decided to let him be for a couple days. Once he said YES I went for it.
|Yes, he is smiling in the picture but once I started cutting |
he lost it! He's hair is crazy! There are still some random
long pieces. Oh well. :)