Sunday, 30 September 2012

Day 95 or so

This was written last week around day 95, just never got around to posting it and I'm trying to catch up. It reads like Amelia hasn't had her birthday yet, but it was Friday. Today is also her day 100, and all her test results are back. 

At the end of this week I feel a little less pressure on my shoulders. I feel like I can breath. Millie is CANCER FREE and there is so much to celebrate. We are coming up on her 7th birthday, the CureSearch walk, and her 100 day post transplant. Life is not normal by any means, but for us it's starting to feel like it is.
All of Amelia's tests aren't back yet, we are still waiting on her chimerism in her marrow  (translation; how much of her marrow is from the new donor, hopefully 100%). The results of this test will decide how the next few months go. 

I have been asked a lot if Amelia is fine now  that she is cancer free and if she can go to school and stuff. The answer is No. The plan is still the same. What is keeping Amelia home and with that lovely mask on is her medication called Cyclosporin. Is it was keeps her body from fighting off her new marrow. It weakens her immune system. She will continue to take it for about 3 more months and then she needs a few months to recover from it. We are hoping things will be pretty "normal" for her near the end of March.
All these pictures are from September 26, the day Millie's marrow was tested. I felt so alone and scared. Thankfully we ran into a few of our cancer buddies, had one of our favorite nurses (really, they're all awesome), and got to see Dr. Verma. We miss her!  It really helped take the edge off to be surrounded by so many people that I know care about Millie. Thank you also for everyone who fasted along with us to prepare for this day. As you know our prayers were answered and Amelia was declared cancer free. 



Sheri Dalton said...

You don't know me but I am friends with Shawna Wilson. My 11 year old daughter Sarah has been following your blog since Tenley was diagnosed about a year ago. She thinks Millie is wonderful!!

This morning she had to fill out a bio for her upcoming piano recital and it asked who her hero was and she wrote Millie Flamm. I just thought I would share that Millie has a fan:). Sarah always prays for Millie that she'll continue to get healthier and that the cancer will be gone for good.

Take care,
Sheri Dalton

Anonymous said...

You are all my heroes! You have been through so much yet still are so positive and faithful! Hugs and kisses to all of you! Yay for Miss Millie!!! Love - Miss Patti

Briana said...

Hooray!!!! What wonderful, wonderful news! It's about time! :) We love you all - Elena continues to pray for Millie all the time. :) So glad to hear this great news and I hope things continue to go well. Hang in there!

Chelsie said...

So happy for you guys! Love her toothless face!

Shannon said...

I recently commented on KSTU's Facebook post, I would like to know how to fulfill this vow I made. Rorrie Casias.

Anonymous said...

The Sour Sop or the fruit from the graviola tree is a miraculous natural cancer cell killer 10,000 times stronger than Chemo.

Anonymous said...

I just want you to know I've prayed with without your family I do know families are forever!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!