Wednesday, 9 February 2011

February 2011 Clinic

I have been trying to write about Millie's clinic since last Thursday when I took her but Austin has been sick, I had art class, Millie is a mad lady on her steroids so I can't get anything done, and the list goes on.

Anyway, things went well. I have had a lot of concerns about Millie being so pale and tired all the time but her blood counts came back looking good. Her ANC was actually a little high so they have upped her dosage to 75% and we will check her blood again in 2 weeks. I wish we could get her dang dosage figured out. My brain is going crazy trying to keep track of what pills she takes when and how many. I am relieved they aren't waiting until our next clinic appointment in a month to find out what counts are again. I hate waiting to find out how she is responding to a new dose. She bounces around so much it's hard to know if she's safe to be taken around other people or not.
Millie's doc thinks that one of the reasons she is having a hard time during Maintenance is because her little body is just plain worn out from fighting. She did so well during her 1st 6 months of intense chemo and because of it, she is having a hard time fighting now. She is still doing well, she will probably just be tired and pale for the next year. I still have my concerns, but for now the doctors aren't worried so I will try not to be either. Easier said then Done.
On a side note, when I put Millie to bed last night she prayed for her usually things; President Obama, That we can sleep good, etc. Then she says, "And please bless that no one will escape from Jail"... not sure where that came from. After I told her that was a great prayer she said, "Oh mom, I forgot I had something really cute I wanted to say". So she continued with her prayer, "Also bless that no one else will get Leukemia and that the kids who have to be in wheel chairs because their legs hurt from cancer will feel better soon, but I'm happy they're in the hospital having fun". I love her and I love her sweet spirit. I also love that she thinks the hospital is FUN. I am so grateful she associates it with crafts and projects instead of the needles and illness.
As for her hair growth...
Clinic Stats:
Height: 106 cm
Weight: 17.1 kg
ANC: 2400

12 comments:

Chelsie said...

Gosh she's cute! I agree that it is wonderful that she thinks the hospital is fun. It makes things so much easier on her and on you. Her hair is fabulous, as was her prayer. I love that she said she had something cute to say. I doubt she realized she being cute already!

Emily said...

I still check up on your blog all the time, even if I don't comment. Still amazed by your strength and grateful for your inspiration:)

Missy said...

I love that she knows how cute her prayers are. So funny!
So you're taking an art class eh? What are you taking? I would love to see your projects :)

Jesse C said...

That prayer is so cute. Also that hair is so cute. Prayer actually rhymes with hair, which is also so cute.

Danalisa said...

what a sweetheart!! love the curls!

Princess P said...

What kind of art? I wanna come :)

lea said...

Look at all that hair! She is so cute...Loved the prayer...darling. Arent our babies amazing? I love them all.

My email is leashepherd@live.com. Thanks in advance for forwarding those pics!

Briana said...

wow hair! its so exciting to see it grow! it is hard not to worry when things keep nagging at you, even when the doctors tell you they're not worried. i hope they can get her dosage figured out soon - i bet this is a much longer road of ups and downs in maintenance than you ever thought you would have!

Carly said...

Her hair is so Curly!!! :D Such a cute little Millie bDillie! She always has such a sweet attitude. I love her cute happy voice. You and Brady are amazing parents.

Chelsea said...

Im loving her hair! Millie is such a doll, I love the "cute prayer". It was good to see you guys for a minute at clinic. XOXOXO

Sandi Martin said...

I love that little girl... she is just so adorable. I'm so grateful she is doing well... and I am amazed at your strength. HUGS... and LOVES...!

Sister Sandi

Carly said...

I show all of my London friends pictures of Millie and Austin on your blog all the time! I love you!!