Millie is one SMART cookie and she knows if 2 parents come to clinic with her then she doesn't get our undivided attention, she prefers to have 1 parent take her. This time it was Brady's turn. That doesn't happen very often so it's always a treat for Millie. She loves her daddy time, even if it's while having poisons injected into her little body.
Brady said everything went really well. Millie was able to make her usual craft with Pat. Pat is a volunteer that seems to always be at clinic! I have started to wonder if she lives at the hospital. ;)
Millie and Pat making bracelets (Millie is showing it in the picture, but it's hard to see)
Height: 104 cm
Weight: 16 kg
Millie's ANC made a HUGE jump from last month. It was 700 which is way low and now it's 4200, which is too high. While she is in her Maintenance phase they like to keep her ANC at a safe level for her to be out and about, but it can't be at a "normal" level either. It's a constant balancing act.
We have been having a problem with her chemo since she's been in Maintenance. Her blood counts have always been too low to have the full 100% dose that most cancer children have. She was taken totally off everything back in August when we went on our Make A Wish trip since her ability to fight infections was basically 0%. They have slowly moved her back up, but she hasn't been able to handle more then a 75% dose without her counts dropping. These first few months have been so frustrating. I feel like we just can't get in a groove and once that happens maybe life will start to feel semi normal again.
They have put her back on a full 100% dose and will check her blood counts in 2 weeks to see how she's doing. I hope we get this all figured out soon, Millie just doesn't handle it well and I hate seeing her sick from it. She was up all night throwing up and her legs were really achy. I felt so bad for her and there was nothing I could do. Every time we gave her medicine to help with the nausea or her aches she would throw it right back up. It broke my heart. She was just standing there in the middle of the night covered in vomit and crying about how she hates this. She kept saying, "I hate this mommy, I hate this". The poor thing was so exhausted already from being at the hospital and she just wanted to sleep.
She is doing better now, but Cancer Sucks.
for Millie's hair growth
Isn't she cute!
i LOVE those cheeks, I just want to pinch them!