They have a bunch of Child Life Specialist at the hospital and they are basically there to play with the kids, bring them games, paints, crafts, whatever they need. Millie and I made this puppet from the supplies they provided for us.
In the process of being at the hospital Millie's hair turned into the biggest rats nest I have ever seen. It took 2 days and a deep conditioning to get it completely out. I was afraid it would make her hair come out but we have recently found out that it shouldn't for the next month. I wasn't sure if it would right away, we heard a few different things at first.
The Child Life Specialists also provide different dolls, books, or ideas to help the kids wrap their head around what is going on. We read Millie a couple different books about other kids with cancer and at the end she said, "mom, I don't want my hair to fall out". I cry even thinking about it. After that night her persona changed completely. Before we were able to cheer her up, get her to smile, and giggle. Once she knew about her hair she was heart broken. It was her icing on the cake. Now that we have officially been home a week and we are trying our hardest to make life "normal" for her. Today she painted (pictures to come) and yesterday she played dress up for a minute.
Going Home.
8 comments:
I wonder when this will all stop being so unbelievable. This one made me cry again.
Oh ya, and that is one heck of a rats nest! I am glad you were able to get it out.
Like Columbus!
My heart aches for her, not understanding everything that is happening to her! But she is such a beautiful little girl, I know even without hair she will still be just as pretty!
I love you ALL!! Sleep good tonight,
I'm so glad to hear that you're using the Child Life Specialists... they have made a world of difference for us. Maya is able to come home and practice giving shots to us with the same devices they use on her. So good to see you both tonight!
I'm glad to have finally read the updates on Millie's leukemia. I can't imagine how tough this must be on all of you. Just wanted to let you know you've been in our thoughts, prayers, and today's fast. We love you all and hope Millie can deal with all of this in the best way possible.
I love the painting pictures of her.
Amanda I can't get you and Millie off my mind. I don't have a computer, it totally crashed on Christmas. I am at my parents so I can check up on you. I drive past willow creek and so badly want to stop and give you a big ug, but I am afraid of germs for Millie. Please let me know what I can do for you! I love you and pray for her all the time.
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