Day 3

1:00 am rolled around and our great night turned into a nightmare. Millie started screaming in pain. The only time I have heard her sound like that was when she had her kidney stone back in January. It was mortifying. Remember our handsome nurse, Eric, well now she wasn't enthralled by him anymore and she was yelling at the top of her lungs for him to DO SOMETHING. She was screaming HELP ME, PLEASE HELP ME over and over again. Other then keep her steady on the toilet and hold the garbage can in front of her there wasn't much I could personally do and I felt so helpless. Eric was great and although Millie was furious with him he got her pain and nausea under control. Before Millie fell back asleep she begged me to call her dad. She wanted him to come give her a blessing and I am so glad he did. I know that God hears our prayers and Millie didn't wake up again that night. This morning she is her happy playful self and she actually just got done doing my hair. She told me it's the new fashion, and my bangs are sticking straight up!

Our nurse today is one of our initial favs, Kathy. We haven't had her since February when Millie first relapsed but I was so happy to see her face this morning. She just premeditated Millie with some benydral and is now getting ready to administer platelets. Her counts are really low today and she got a minor nose bleed last night. So glad it wasn't worse, they are nearly impossible to stop when their platelets were as low as Millie's are. 

Millie's test results are back and we know what has been causing all the pain. She got a bacteria called C-Diff. it's from all the antibiotics she is on. She has gotten it once before and usually it takes 2 weeks for it to heal, but with her transplant she will have it for the duration of our stay here. Her body can't fight anything off so once she gets something it sticks with her. They did start her on a new antibiotic which is a ironic to me since that's what caused it in the first place, but hopefully it will at least help with the symptoms and things won't get worse.

Millie is also hooked up to her IV pole 24 hours a day. We have rigged it up so that she doesn't have to move it around as much,  but it does cause a problem when her cords get all tangled up, but it's better than her having to drag that dang thing around with her all the time. It hasn't slowed her down too much, other then her dancing. She feels like she can't dance now. 

Today she will receive:

Benadryl

Platelets

Cyclosporine

Oxycodone 

Neupagen

TPN and lipids

Meropenem

Amphoteriein (iv antifungal)

Mycophenolate

Actigoll pill (protect liver)

mouth care (4x day)

zofran (nausea every four hours)

meropenem (iv antibiotic 3x day)

Flagil pill (c-diff antibiotics 3x day)

Ativan (if needed, usually once a day or so)

My Austin man is spending the day with his Aunt Kim and her kids. I hope he is a happy boy, Brady mentioned that he was very sad this morning and just wanted Brady to stay home with him and snuggle. This is draining on Austin too.

As for the rest of the day it went smooth considering. Millie did throw up a handful of times, but I just feel like things could be so much worse. 

Pictures... my phone is still giving me issues, but I'm working on it. I'll post when I get them.